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RICHE – Research Inventory, Indicators, Gaps and Roadmaps for Child Health in Europe - an EU FP7 project

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1 School of Nursing and Human Sciences, Dublin City University, Dublin, Ireland
2 Nordic School for Public Health, Göteborg, Sweden
3 Fondazione IRCCS, Istituto Neurologico Carlo Besta, Milan, Italy
4 Department of Child and Adolescent Psychiatry, Psychotherapy, and Psychosomatics; Research Unit Child Public Health, University Medical Center Hamburg-Eppendorf, Hamburg, Germany
5 Center for Healthcare Quality, Masarykova Univerzita, Brno, Czech Republic
6 River Island Academic Centre for Paediatrics and Child Health, Northwick Park, Imperial College, London, United Kingdom
7 Institute for Child Health, I.R.C.C.S. materno infantile Burlo Garofolo, Trieste, Italy
8 Centro de Estudos de Educação para a Saúde, FMH, Universidade de Lisboa, Lisbon, Portugal
9 Evidence Unit, Health Research Board, Dublin, Ireland
10 Open Applications Consulting Ltd., Dublin, Ireland
11 PERU, Universite Libre de Bruxelles, Brussels, Belgium
12 Institute for Public Health Genomics, Cluster Genetics & Cell Biology, Universiteit Maastricht, Maastricht, The Netherlands
13 Institute of Health and Society, University of Newcastle upon Tyne, Newcastle, United Kingdom
14 School of Medicine, Medical & Biological Sciences, University of St. Andrews, St. Andrews, Scotland, United Kingdom
15 Sociedad Española de Pediatría Social, Madrid, Spain
16 National Institute for Health and Welfare THL, Helsinki, Finland
17 Department of Health Statistics, Norwegian Institue of Public Health (Nasjonalt Folkehelseinstitutt), Oslo, Norway
18 School of Health and Education, Reykjavik University, Reykjavik, Iceland
19 Egészség Monitor, Budapest, Hungary
20 Institute for Health System Research, Johannes Kepler University, Linz, Austria
21 Centre for Public Health, National Institute of Health and Care Excellence, London, United Kingdom
22 Department of Environmental Epidemiology, Nofer Institute of Occupational Medicine, Łódź, Poland
23 Faculty of Sociology and Social Work, Universitatea Babes Bolyai, Cluj-Napoca, Romania
24 Department of Public Health, Erasmus MC - University Medical Center Rotterdam, Rotterdam, The Netherlands
25 National Institute of Public Health, Ljubljana, Slovenia
26 Department of Chronic Diseases, Estonian Centre for Behavioral and Health Studies, National Institute for Health Development, Tallinn, Estonia
27 Clinical Epidemiology, Department of Medicine, Karolinska Institutet, Centre for Health Equity Studies, Stockholm, Sweden
28 Haven Paddington, St Mary's Hospital, Kings College Hospital NHS Foundation Trust, London, United Kingdom
29 Nofer Institute of Occupational Medicine, Łódź, Poland
30 CMDT/IHMT, Universidade Nova de Lisboa, Lisbon, Portugal
DOI
10.7287/peerj.preprints.295v1
Published
Accepted
Subject Areas
Epidemiology, Health Policy, Pediatrics, Public Health, Science Policy
Keywords
Child health, Child public health, Europe, Research strategy
Copyright
© 2014 Staines et al.
Licence
This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, reproduction and adaptation in any medium and for any purpose provided that it is properly attributed. For attribution, the original author(s), title, publication source (PeerJ PrePrints) and either DOI or URL of the article must be cited.
Cite this article
Staines A, Rigby M, Leonardi M, Ravens-Sieberer U, Bourek A, Blair ME, Tamburlini G, Gaspar de Matos M, McCarthy A, Ottová-Jordan V, Alexander D, Kilroe J, McIntyre M, Alexander S, Brand A, Colver A, Currie C, Díaz Huertas JA, Gissler M, Grøholt E, Gunnlaugsson G, Kaposvári C, Mechtler R, Morgan AR, Polańska K, Popescu LL, Raat H, Truden P, Veidebaum T, Hjern A, Cerniauskaite M, Brennan LK, Cogoy L, Tomé G, Hennessy C, Hanke W, Roth M, O'Sullivan R, Meucci P, Rasche C, Santos T, McVeigh T, Gaspar T, Ramiro L, Köhler L. 2014. RICHE – Research Inventory, Indicators, Gaps and Roadmaps for Child Health in Europe - an EU FP7 project. PeerJ PrePrints 2:e295v1

Abstract

Background There is a substantial amount of research in child health published each year in the European Union. Much of this work is paid for from public funds, or from charitable donations. This work covers many areas, but it is fragmented, and a great deal of it, especially the material not published in the indexed scientific literature, is hard to find, and harder to access. Response The EU, as one of the major funders of child health research, has funded a project, the Research Inventory of Child Health in Europe (RICHE), to prepare a roadmap for the future of child health research in Europe. Using a life course perspective, the project sought to identify the research done, define the gaps in the research, and make recommendations for future research funding priorities. Content RICHE is an FP7 funded project (contract no. 242181) tasked with preparing roadmaps for the future of child health research across Europe. Using a life-course perspective, the project has designed, and carried out, an open, transparent, and justifiable process to make recommendations for future research funding. We acknowledge that such recommendations are value judgements, and our aim was to present carefully justified value judgements. The project, which had 25 partners, in 19 countries, was organised into six workpackages – WP1 an inventory of child health research, including funded projects, reports, funders, and people; WP2 on ways of measuring child health, and indicators for child health; WP3 on gaps in child health research; WP4 on the roadmaps for future research; WP5 maintains a platform at http://childhealthresearch.eu/ ; WP6 was responsible for project management. Results The project has finished, and launched a report on 'Roadmaps for the Future of Child Health Research in Europe'. A key recommendation is the establishment of a European Child Health Observatory, with a focus on participation by children and young people. The work of implementing these proposals to improve the health of European children can begin.

Author Comment

This is a report of the design and structutre of our project, as it was delivered. Our main reports are on our website http://childlhealthresearch.eu/

Additional Information

Competing Interests

Con Hennessy and Mel McIntyre are employed by Open Applications Consulting Ltd.; Anne McCarthy is employed by Health Research Board; Giorgio Tamburlini and Laura Cogoy are employed by the Institute for Child Health, I.R.C.C.S. Materno Infantile Burlo Garofolo; José Díaz Huertas is employed by the Sociedad Española de Pediatría Social; Mika Gissler is employed by the National Institute for Health and Welfare THL; Csilla Kaposvári is employed by the Egészség Monitor; Paolo Meucci and Milda Cerniauskaite are employed by the Fondazione IRCCS, Istituto Neurologico Carlo Besta. The authors declare there are no competing interests.

Author Contributions

Anthony Staines conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, prepared figures and/or tables, reviewed drafts of the paper.

Michael Rigby conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Matilde Leonardi conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Ulrike Ravens-Sieberer conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Aleš Bourek conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Mitch E Blair conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Giorgio Tamburlini conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Margarida Gaspar de Matos conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Anne McCarthy conceived and designed the experiments, performed the experiments, reviewed drafts of the paper.

Veronika Ottová-Jordan conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Denise Alexander conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Jean Kilroe performed the experiments, analyzed the data.

Mel McIntyre conceived and designed the experiments, performed the experiments, wrote the paper, reviewed drafts of the paper.

Sophie Alexander conceived and designed the experiments, performed the experiments, analyzed the data.

Angela Brand conceived and designed the experiments, performed the experiments.

Allan Colver conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Candace Currie conceived and designed the experiments, performed the experiments, analyzed the data.

José A. Díaz Huertas performed the experiments, analyzed the data.

Mika Gissler conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Else-Karin Grøholt conceived and designed the experiments, performed the experiments, wrote the paper, reviewed drafts of the paper.

Geir Gunnlaugsson conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Csilla Kaposvári conceived and designed the experiments, performed the experiments, analyzed the data.

Reli Mechtler conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Antony R Morgan conceived and designed the experiments, performed the experiments, reviewed drafts of the paper.

Kinga Polańska conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Livia L Popescu conceived and designed the experiments, performed the experiments, analyzed the data, reviewed drafts of the paper.

Hein Raat conceived and designed the experiments, performed the experiments, analyzed the data.

Polonca Truden conceived and designed the experiments, performed the experiments, reviewed drafts of the paper.

Toomas Veidebaum conceived and designed the experiments, performed the experiments, reviewed drafts of the paper.

Anders Hjern conceived and designed the experiments, performed the experiments, analyzed the data, reviewed drafts of the paper.

Milda Cerniauskaite performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Lauren K Brennan performed the experiments, analyzed the data, reviewed drafts of the paper.

Laura Cogoy performed the experiments, analyzed the data.

Gina Tomé performed the experiments, analyzed the data.

Con Hennessy conceived and designed the experiments, performed the experiments.

Wojciech Hanke performed the experiments, analyzed the data.

Maria Roth conceived and designed the experiments, performed the experiments, reviewed drafts of the paper.

Rachel O'Sullivan performed the experiments, reviewed drafts of the paper.

Paolo Meucci performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Carsten Rasche performed the experiments, analyzed the data.

Teresa Santos performed the experiments, analyzed the data.

Treasa McVeigh performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Tania Gaspar performed the experiments, analyzed the data.

Lucia Ramiro conceived and designed the experiments, performed the experiments, analyzed the data, reviewed drafts of the paper.

Lennart Köhler conceived and designed the experiments, performed the experiments, analyzed the data, wrote the paper, reviewed drafts of the paper.

Human Ethics

The following information was supplied relating to ethical approvals (i.e., approving body and any reference numbers):

Ethical approval was secured for the fieldwork elements of this project from the institutional ethics committees in the individual partners undertaking that work. Consent to take part in surveys was verbal, or given in written form, depending on the methods being used. Full details will appear in the reports of individual pieces of work.

Grant Disclosures

The following grant information was disclosed by the authors:

European Commission DG Research 242181

Funding

The RICHE project was funded by contract no 242181 from the European Commission DG Research, under the FP7 call HEALTH-2009-3.3-5: European child health research platform. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.

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RICHE – Research Inventory, Indicators, Gaps and Roadmaps for Child Health in Europe - an EU FP7 project
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